I have been to many support groups so far. Some I liked, some I didn’t like, and some that just did not happen. These stories are based on my experience and should not be solely used to persuade or dissuade finding a support group.
My first attempt at a support group falls into the “Just Did Not Happen” category. In 2017, I wanted to go to a NAMI (National Alliance on Mental Illness) support group for people with mental illness (there is a support group for family members of mentally ill people too). This was because I had given up on therapy back then and wanted to learn tools and techniques. However, the advertisement on a local newspaper printed the wrong date so there was no meeting that day. The support group was usually on Wednesdays and Wednesdays are kickboxing days.
Years later (in September 2020), I decided to join an online support group for autistic people who were either professionally diagnosed or suspect that they’re autistic. This is where I found AANE. My second attempt at a support group also fell into the “Just Did Not Happen” category, but this was due to the facilitator being unable to log into Zoom. I have returned to that group and have had fun ever since. More on that later.
I really wanted to go to a support group this past September, so I went to another support group (also with AANE). I didn’t have as much fun because I had a headache and introductions took up most of the time. It also wasn’t at my desired time, so I switched back to the aforementioned group time.
October 2020 was the first time I experienced a support group in which I enjoyed. I thought that the group facilitator forgot to show up in September, but I found out that the facilitator had technology issues. There were not as many people in that group that month as is typical, so I had a lot of fun talking with the facilitator and other group members. This month, I had even more fun! With this group, it isn’t as structured regarding topics. We introduce ourselves and we talk about things based on what someone said. I learned from someone that I may find comfort in logic because I am a musician for fun and music can be logic-based. Well, that explains why I wanted a music theory book.
Going slightly off subject, I will talk about AANE support groups. This is not an endorsement for AANE and I am neither an employee nor facilitator of their support groups. With AANE support groups being virtual now, it gives people living outside of the New England area of the United States a place for support. Heck, there have been people living outside of the US attending the meetings! Many of the facilitators either have a family member who is autistic or the facilitator is autistic. Not only are there support groups for autistic people, but there are also support groups for non-autistic people who have an autistic partner (this support group is not free), parents with autistic kids, grandparents with autistic kids, women, etc. Events are listed in a calendar format here. These groups require registration ahead of time since you will need to register to get the Zoom link. This also means that your name on Zoom needs to be the name you used to register because the facilitators’ Zoom is set with a waiting room and they check your name against the name in their registration list before you get in. Due to this, I will not tell you which support group I attend. I will also not disclose myself in the support group if you happen to show up to the same one I attend and say that you found out about the support group because of blogger DiaryOfSelf. You would know my real name if I did that and I prefer to go by “Dia” or “Cara” in certain online spaces. I hope there can still be virtual meetings once in-person meetings are safe again because there is only one support group in my state.
I decided to try a women’s group as well! However, I came out of it feeling hopeless because they made me realize even more that an autism diagnosis will cause issues with medical support (they mentioned the problem with doctors and female patients as well as doctors and the problems with neurodivergent patients) and disclosing a diagnosis will mean that any REASONABLE accommodations I would need will likely not be given to me. However, my doctor takes me seriously and the way that my job works, I can declare a disability online without my supervisor knowing. I would probably talk about any accommodations needed with my role’s lead (not my supervisor). I may go again in December to see how I feel, but I think I am going to stick with the group that causes me to have a lot of fun!
It took some time for me to find a group that I liked, and this may be the case for you too. Figure out your expectations for support groups and find support groups that meet your expectations.