Awareness

What to Do If Someone Says “Asperger’s”

Warning: As you can see in the title, I will be using the term “Asperger’s” in this post. I will also mention autism elitism, Naziism, and murder. Please stop reading if these are triggers for you. Thank you.

In 2013, the DSM V came out and removed the diagnosis of Asperger Syndrome and brought Autistic Disorder, Asperger Syndrome, and Pervasive Developmental Disorder Not Otherwise Specified (PDD-NOS) into the category of Autism Spectrum Disorder. However, people still use the term “Asperger’s” when they talk about themselves. First, let’s take a look at reasons why someone may say they have “Asperger’s” instead of autism.

  1. The person was diagnosed with Asperger Syndrome back when it was a separate diagnosis.
  2. The person lives in a country that still has Asperger Syndrome as a separate diagnosis.

The only difference between Asperger Syndrome and Autistic Disorder is that people with an Asperger’s diagnosis did not have significant speech delay. Thus, if I had been diagnosed sooner, my official diagnosis would have been Asperger Syndrome.

So besides the fact that there is only one major difference between Asperger Syndrome and Autistic Disorder, what is the harm in saying “Asperger’s”?

Asperger Syndrome was named after Hans Asperger, born as Johann Friedrich Karl Asperger. While he wasn’t a Nazi himself, he was aided and supported by Nazis for studies about autistic children. The children in his study were often sterilized and/or sent away to be euthanized.

There are also concerns about elitism in autistic communities. Asperger’s may be seen as the “better” autism. The “smarter” autism. They are called “high-functioning” autistic people, with that label ignoring their challenges.

Okay, now that I gave brief reasons why the term “Asperger’s” is considered a harmful term, what should you do if someone says “Asperger’s”? Well, that depends on your comfort level. Some people don’t like confrontation, so those people might not do anything. However, if you want to say something, follow these tips:

  • Calmly explain why the term “Asperger’s” should not be used. Key word: calmly.
  • This applies moreso to making this comment online, but might work if you hear someone say the term: If someone already told someone to not say “Asperger’s”, don’t say it too. People already don’t like being corrected, but the person may feel attacked if multiple people tell them the same thing about being wrong.
  • If you get pushback, tell people that autistic people know themselves best and how non-autistic people don’t always have our best interests in mind. Just like the first tip, mention this calmly.

Sorry for the long wait between blog posts, but I hosted my church’s first ever Disability Day of Mourning vigil and I needed to plan and prepare. I can’t promise to post more often as work has gotten busier.

2 thoughts on “What to Do If Someone Says “Asperger’s”

    1. Thank you for commenting! This post was partially inspired by some support group members’ frustrations over people using the term despite being constantly told to not say “Asperger’s” anymore and the fact that some people fear speaking up to educate people on why certain terms are considered harmful.

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